Category Archives: 2015

What me and Old Blue Eyes have in common…

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This past December, I celebrated my 1 year Cancerversary, one week after my Aunt lost her five year battle with aggressive lung cancer. What happens after you survive cancer and you lose a loved one to the disease? That’s something that I don’t think even the best doctors and nurses in the world can prepare you for. I couldn’t remember being so angry at the Universe when I was going through chemotherapy or even after being diagnosed. But after my Aunt Anne passed away, I wanted to high five the all mighty creator…in the face, possibly with a closed fist. All I could think was, “Why? Why did she have to leave and I’m still here?” I could have screamed it through hot tears at the Universe if I thought someone would answer me.

The night I celebrated my Cancerversary I wore a purple lei, her favorite color, in her honor. What I hadn’t realized until just days before was that my very special day also happened to be the 100th birthday of Old Blue Eyes himself, Frank Sinatra.

I fell in love with Sinatra as a child, first seeing him as a cameo on an episode of an old classic cartoon I was watching with my grandmother. She sat next to me in her rocker, eyebrows wiggling up and down as she said “That’s Frank Sinatra” with a mischievous smile. Luckily my grandfather was asleep in his recliner.

Sharing my special day with Sinatra, made my heart smile. I like to think of it as the Universe’s way of letting me know my grandparents were with me in spirit, proud of all I had overcome.

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As though that in itself weren’t special enough, my 1 year Cancerservary also turned out to be the Day 3 Hawaiian Luau celebration of the Matthew Hussey retreat I was attending in Florida. The energy I experienced that night was like anything I’ve felt. Perhaps, only parallel holding my son and daughter for the first time. Yeah, that good.

The energy between all of us High Value Women attendees and the GTG team was indescribable – 130 plus strangers, united by a desire for change. The kind of change that happens within, on a core level.

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(Left to right: Me, Epic Emma (above), the Lovely Lindsay and the Extraordinary Emmylou)

The luau celebration ended only after half of us (myself and three closest soul sisters; Emmylou, Lindsay and Emma included) jumped into the pool fully clothed with the GTG team…actually it ended once we all jumped back out of the pool and started dancing again!

I’ve used that night as my emotional button for joy at least a million times since returning home. Okay, maybe only half a million…because I love the feeling it gives me to think of those women and the bond we all share.

I can’t think of a better way to have spent my first Cancerversary – on my favorite musician’s 100th birthday, with some of the most inspiring souls I have had the pleasure of becoming friends with.

 

 

#5WordsToCancer #StrongerThanCancerISurvived

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In one of my usual bouts of insomnia tonight (this morning?) I decided to scroll through my Instagram feed before studying for an exam I have in one of my classes.

If you’re reading this then you know I’m clearly hard at work…

blogging…

but I digress.

In the midst of my thumb swiping, I fell down the rabbit hole into the Instagram page for the I Had Cancer website. It’s a great social networking site for those of us affected in some way by cancer; be it survivor, relative of a cancer patient or someone mid-treatment. It’s also a kickass social platform for people to share their angst, victories and everyday battles with cancer. Our cancer journeys don’t end when treatment does. For many of us, it’s a lengthy journey to take back our life and what little control we have over it.

“I Had Cancer” has launched their #5wordstocancer campaign again. It got me thinking… What if cancer was this tangible entity I could write a letter to? What would I say? What would my five words to cancer be?

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Dear Cancer,

You may not remember me but I will never forget you.

We met, officially, in December of 2013. You’d been watching me for some time, though only you would know how long that was before we became acquainted. Was it months? Perhaps years?

I had an inkling something wasn’t right. I could feel your presence lingering around me, dropping hints, robbing my curves of their soft flesh for years, leaving behind a frame comparable to that of a pre-pubescent boy. 

When you made your debut into my life that summer (2013), you didn’t introduce yourself properly. You told me your name was stress. But what’s in a name right? So I reserved doubt about your true nature only for conversations with overly concerned family members. 

Apparently their concern was warranted.

By the time you revealed your true nature to me, you had already begun infesting my life from behind the scenes. My colon, my rectum, my lymph nodes. You were a literal pain in the ass. I thought major colon resection surgery was enough to evict your sorry ass from occupying my temple. But being the persistent little fucker you are, I was wrong. 

Too many lymph nodes were tainted by your indecency and overexposure to the healthy cells in my body. So you introduced me to Chemotherapy and Steroids. I hated all of you but I never questioned why you (Cancer) chose me. I never wondered why in all the healthy people of the world you wanted me. You’re a selfish prick, why not me?

 Your friend Chemo took my energy. The steroids brought insomnia, and also an unbelievably strong desire to rotate furniture and clean at 2 a.m. (Who would have guessed right?) My sleep patterns are still somewhat fucked.  Being the bully you are, you taunted me by letting my hair thin just enough to make me self-conscious, but not enough for anyone else (but my hairdresser) to notice. Guess what fucker? It grew back in twice as thick and healthier than ever. 

And my curves? They’re back too. In one year, I’ve gained more weight than I could have hoped for. I fit into my jeans in all the right places. My thighs are so sexy they can’t stop touching each other 🙂 I finally feel like the beautiful woman I am. The warrior. The survivor.

I should really be thanking you Cancer.

You brought me closer to my family. You’ve given me new found friendships that continue to change my life for the better. I’m inspiring those around me and taking better care of my mind and body than I ever thought I would. I’ve tapped into an inner strength that I didn’t even know existed. You tried to take it all from me, but in the end Cancer, all you did was give me everything.

I know there’s always that slim possibility we’ll meet again someday. Just know if we do, I’ll be ready for you. You’ve been warned.

Never or truly yours,

Amber

#StrongerThanCancerISurvived

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Rise and Shine Pumpkin!

I’m exhausted. What most (non-cancer having) people don’t know is that the effects of intensive chemotherapy treatments linger on for months and even years after treatment has ended.

I can remember picking up the phone to call my mother to ask her a quick question a few months ago. In the time it took for me to dial her number, let the phone ring and hear her answer…I forgot what I was going to ask her. Once we started talking I finally remembered what the question was. It was like that feeling you get when you walk into a room to get something – but completely forget what it was in the first place until you retrace your steps.

Usually big events or scheduled dates on the calendar I can remember. I also have literally about three calendars I plan everything on but I know my brain cells aren’t quite the same since chemo. Brain game apps are great training exercises and intense reading for work and school helps. But I still often wonder how much longer the effects will linger in my body.

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Fatigue is another thing that comes and goes. Sometimes I have energy for hours on end; cooking and cleaning, doing homework and running errands. Wake up at 4 to work out for two hours and then go home, get myself and my kiddos ready for our day.

Then there’s days like today when I’m wiped out. I have the motivation to do what I need to but lack the energy to follow through. Or maybe I give myself that jumpstart and motivational self talk to get my ass out of bed on time to get moving, but halfway through I lose the energy to get everything done. I also think I try to accomplish way too much in a day since it’s just me who’s here to do it.

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I also wonder if it’s the chemo, being a single mom of two high-energy munchkins or a combo of the two.

Either way, right now I need to get my ass in gear and get these babes of mine up and ready for another busy day.

Happy hump day!!!

Unwrapping the “Mummy”

Photo on 7-31-15 at 9.16 PM Friday night. Two days after my chemotherapy port-a-cath removal. It was time to remove the bandage covering the suture site where my port had once been. My surgeon warned me about possible bruising but I didn’t know what to expect when the bandage came off.

Slowly I began peeling back the thin, clear layer of water-resistant tape that covered the bandage. A corner here, the sides there until finally I could remove the bandage altogether, exposing the steri-strips protecting the suture site.

One layer of dissolvable sutures beneath the skin, one layer of sutures in the outter layer of skin. I thought back to when my surgeon was stitching me up. I tried to look away but could see him threading the skin in the reflection of the nurses’s glasses. I could feel the taught tugging of my skin as he brought the layers closer together until the hole was whole again.

But there wasn’t any bruising.

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Not for the faint of heart, a close up of my former port site. Sutures and all.

Maybe it was the self-Reiki I had given to the area, on and off, the day of my procedure. Maybe it was a combination of that, having an Angel or two on my shoulder and being a quick healer.

The unveiling of my former port site was odd. Not seeing that triangular shape beneath my skin or feeling the three, tiny, silicon dots in the center of it – the marker that guided my nurses time and time again where the chemo needle needed to go. Strange.

Just my skin. My flat, sutured, sore skin.

 

 

Arrivederci!

There’s something about the giant, sterile, surgical light that hovers above you in the surgery room. Whether it’s minor surgery or major, it doesn’t matter. Seeing that lamp sent me into a panic.

I was fine when I checked in to have my port removed. Fine sitting there as the nurse came and checked my vital signs and then escorted me into the room where minor surgery is performed. My surgeon, “Dr. D”, went about preparing what he needed to open me up and literally cut out my chemotherapy port-a-cath.

Immediately after my port was removed. Trying to fight back tears of joy long enough to take a "post port removal" selfie :)
Immediately after my port was removed. Trying to fight back tears of joy long enough to take a “post port removal” selfie 🙂

I started breathing heavy, hot tears flushed down my face…and I had just laid back onto the surgical bed. The nurse took my hand as Dr. D started prepping my skin, adding the dressing to the area that isolated the spot where he needed to remove good old “Penny”. He hadn’t even applied local anesthetic and I was quickly losing my composure.

Thank goodness my surgeon is the smartass that he is. The first needle was nothing. I’ve had blood draws taken that were far worse. I didn’t know he was going to inject about four or five more (possibly more, I lost count after the fourth injection).

It felt like someone was digging around, underneath my skin, with a miniature hot poker. Dr. D says to the nurse “Would you call that a whine or a whimper?” And when I wasn’t laughing he told me it was time to start manning up! Believe it or not, his sarcasm put me at ease.

Dr. D isn’t the type of doctor to coddle his patients. Tough love maybe but it’s the kind of attitude I grew up with and the reason why I probably got through my cancer treatments with such an optimistic attitude. It’s the “suck it up buttercup” mentality that allowed me to say “Okay, I’ve got cancer, what do I have to do to kick its’ ass ad move on with my life?”

He got me to calm down, that and a combination of the local anesthetic kicking in. I started taking slow, deep breaths and made small talk about my munchkins with the nurse.

I was done about ten minutes after Dr. D opened up the port site.

245b6a3786bfe4aaf8a939164f3d1bf5On the way out, the nurse asked me if I wanted to give a single finger salute. I said “What? No, I really like Dr. D” After bursting into laughter, she said “I didn’t mean to Dr. D, I was talking about your port!”

I looked over toward my surgeon and saw it there on the counter next to him. In a little plastic, specimen collection jar was my chemotherapy port.

That part of my life, for the most part,is over now.

A new journey begins…